How our lives have been touched by preeclampsia, cerebral palsy, epilepsy, feeding tubes, failure to thrive and whatever else comes our way
Saturday, March 12, 2011
Here Comes The Sun
Ahh, we are on the home stretch! When we got to the hospital yesterday they had switched Gabe to all bottle feeds and no gavage. They left his NG tube in just in case. He did well with all his bottle feedings except 1 during the night last night. They rechecked his labs this morning and all still looks well so we are set for rooming in tonight and discharge home tomorrow morning. He still has his heart murmur but they said it is related to his pulmonary artery stenosis and that he will hopefully outgrow it by 6 months or so. They trust our pediatrician to keep up with it. He still has to do his car seat test but he has not had any lung issues since the first 2 days so I think it will go fine. Of course, as our luck would have it, Kenneth went back to work today. They are down to emergency staffing because of a horrible fire that is going on day #2 in this area. Our plan was for him to take off if we got the OK to room in tonight. Well, he can't take off now. It is OK though. The girls are going to spend the night with Kenneth's mom tonight and then he will pick them up when he gets off duty in the morning and bring them up to the hospital to meet their baby brother. It has been so weird that they have had a brother for over 2 weeks now but he has been basically non-existent in their lives. It is hard to explain. He is this little guy we talk about a lot but they really have no idea who he is. It's just weird. Anyway, they will get to meet him tomorrow morning. We are not telling them just in case something changes. I couldn't deal with disappointing them anymore in regards to Gabe. So it will all work out- just as it always does. God is always faithful and takes care of his people. I am learning day by day to praise God when the sun is shining and to also praise him in the storms. The storms always end eventually and the sun comes back out to shine...
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I am over the moon excited for you!!! xoxoxoxo
ReplyDeleteSo excited for you Jamie! I can't wait for your little girls to meet their little brother! So touching!
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