I spent Friday evening in labor and delivery again. It was the 3rd time in 4 weeks. I am not liking the trend at all. I felt fortunate to get to come home again though. My doctor seems a little less optimistic with every visit. delivery is looking like it will be earlier and earlier with each time we meet. I am still hopeful to hold out to 30 weeks. I am somewhere between 24-25 now. Please continue to pray for baby Gabe that he will tolerate his environment and hold on until it is safe for him to be born.
Anna's physical therapy evaluation went well last week. Basically, she needs PT but cannot get it through the school because to qualify for school PT, your need has to impact your ability to function in school. Anna will do OK in a school setting. She is just kind of awkward. The PT was awesome though and told me where we could go for private PT if we wanted or if not she showed me a ton of stuff we can do at home. I think given all that is currently going on we will stick with the home stuff for now and see how she does. The Amtryke they are getting her should actually help a lot too so I am hopeful maybe we can keep the PT at home. I want to always do what she needs but anything we can do at home and avoid traveling for is a bonus. Anna's hamstrings are really tightening up and we have got to really work on stretching. The PT also showed me some things to do before bed with Anna to maybe help her sleep better. I started last night and she did seem to sleep well. I do not know if it was the exercises, a fluke, or just her exhaustion from a busy weekend but it did work well. She also told us to get Anna some Under Armour type clothes to sleep in because sometimes the pressure can help with rest. I will do what I can to fit that into the budget as well.
After her PT eval I took Anna to a local Prosthetics and Orthotics (P&O) place. The people there could not have been any nicer and seemed quite knowledgeable. The bonus is that the guy that owns the place used to do P&O for Cook Children's which is where we go. So I feel like I am getting quality work from someone who understands kids without having to drive so far. He fitted Anna with something called Sure Steps. They are an SMO (Supra Malleolar Orthotic) versus an AFO (Ankle Foot Orthotic). It is much smaller and allows for much more use of Anna's own muscles. We will pick them up next Monday and hope for the best. They are for low tone kids which is what Anna is. Anna got to pick out the pattern and they are cute. They have little bumble bees on them. I am hopeful they will help her. He also suggested we get back to the ortho because he thinks part of her problem is coming from her hips. The place is called Alliance Prosthetics and Orthotics and I just do not have enough good things to say about them.
Anna's follow up from eye patching is next week. Her eye does not seem much better to me except when the patch is on. On one hand I would like to patch a little longer and see if it helps but then I look at the financial side and if we go ahead and have the surgery this year it will be paid at 100% because we have met our total out of pocket. I will be interested to see what Dr. Norman thinks. I am pretty sure he said if the patching had not fixed things by her next appointment that it wouldn't help but I cannot remember for sure. I've slept since then.
I am also taking the girls to the dentist next week. Carly has a cavity that has to be filled. She does well and actually likes the dentist. Anna is having her first cleaning. Please pray for the dentist, this should be fun...