Tuesday, November 3, 2009

Quick Update From Cook's

We got a call from Cook Children's yesterday that they would be placing Anna's Gbutton today. That is service- you agree to the tube on Friday and have it placed on Tuesday. So we came in early this morning. All is going well. I do have to say that Anna has been in a bit more pain than I expected but she is well controlled with her pain meds. About 6 hours after the tube was placed they began running Pedialyte through it. They will do that until about midnight when the will start with the Peptamen. The home health company is supposed to deliver our feeding pump and a case of Peptemen before lunch tomorrow and then hopefully we can go home. They will stop the continuous feeds in the morning and give her a bolus feed and make sure she tolerates that also. I have to brag on Cook's- this place is awesome and we have been treated so nicely from the housekeeping staff and cafeteria staff to the nurses and physicians. It is so nice to have a wonderful children's hospital to go to that isn't too far away. Carly is staying with my parents and she is doing well also. I was quite apprehensive about leaving her for a hospitalization since the last one I left her for lasted so long but she has done well. She came to visit Anna today but was a bit afraid of her due to Anna's IV and feeding tube. The IV will be out before we go home and I know Carly will grow accustomed to the button and all will be well. God has really taken care of us right down to the tiniest detail, as he always does. I have to say that watching the nutrition flow into Anna's body has also breathed new life into me. I have not felt this relieved in a very long time. I know now that no matter what she chooses to eat, we will nourish her. I know there will be bumps along the road but I really wish we would have done this sooner! Thank you so much for your continued prayers for us! I have not really had much sleep (not that that is new) so I hope this post makes sense but if not, oh well...

1 comment:

  1. Wow, that was so fast!! I'm sure you're relieved to have it done. I'm so glad it's over with for you and on with the feeding! :)