Thursday, September 10, 2009

All Is Well

Everything went well today. We had to be at Cook's at 8 am. We left he house at 6 am and got stuck in traffic and luckily made it there right at 8. As usual, the staff was fabulous and got us right back to endoscopy. They prepped her with a nasal inhalation of versed and fentanyl and it took her awhile but she got drowsy and off she went. She was gone for about 45 minutes. They used general anesthesia and said she did well. We went back to see her in recovery and for the first time EVER, she didn't want to wake up. She would cry a little and then go right back to sleep. They said if we were comfortable we could go ahead and leave and so we did. If you ever feel you need attention (and we don't) just take a wire to your kids nose and go into Chick-Fil-A. She was the topic of all conversation. Anyway, Dr O said her EGD looked fine. He said the visual picture is worth about 50-60% of the equation and the biopsies and probe are the other part. So the probe is in and Anna is actually tolerating it rather well. We had it around her neck but it looked highly uncomfortable so we put it in a back pack and strapped it to her. It has buttons you push if she is siting up or lying down, eating or not, and if she is showing any symptoms of a problem. She can only eat and drink for 30 minutes every 4 hrs. During the other 3 1/2 hrs she cannot have anything by mouth. They had elbow immobilizers on her but we took them off. We may need them tonight as people tend to pull out tubes during sleep unintentionally. We will pull the probe out in the morning and return it (or be charged another $10,000). We should have all of the results by Tuesday or Wednesday of next week. Thank you so much for your prayers and well wishes! As always, you are awesome. The Periactin was working great until yesterday when Anna totally wigged out. If you don't believe me, ask my friend Joanne who witnessed the beginning of the meltdown. It started with her biting me, then beating her head into the wall and laughing hysterically about it, then hitting me, then hitting the speech therapist, then hitting her sister in the head with the computer mouse, then her biting herself, and well, you get the picture. It started when I gave the medicine and ended when the dose wore off so I am certain that was it. Not that she hasn't been a brat before- but not like that, it was awful. Anyway, if she does not have reflux we will try to continue the Periactin but give it every other day and see if she tolerates that. Then we will start the feeding clinic/therapy. I hope they can help but am unsure if we can absorb the cost and the miles. We shall see...


  1. Ouchie!
    I hope you get some answers really quick from the test - I saw your FB post where you said it was 600 bucks for your part - OUCH again. I know though that if it answers some questions and maybe helps Anna eat then it ALL be worth it.

    I'm so sorry about the medicine - that really stinks.

    Thinking of you guys right now.

  2. I'm glad she's tolerating the tube looks so uncomfortable! Poor thing. Hope you get some answers that help! :)